Supporting Australian Alphas since 2002

Links

Here are some places on the internet which we think may be useful to Australians affected by or interested in Alpha-1 Antitrypsin Deficiency. Kindly note that these links are for informational or educational use only. Inclusion does not imply endorsement or approval by the Alpha-1 Association of any organisation listed. To access a topic please select it from the list below:

{slider Professional Societies of Allied Healthcare Providers in Australia & New Zealand}

Asthma Australia

Asthma Australia is an association of all the Asthma Foundations throughout Australia.

Australian and New Zealand Society of Respiratory Science

The Australian and New Zealand Society of Respiratory Science (ANZSRS) Inc. was formed in 1980 to serve the professional needs of scientists and technologists employed in clinical respiratory function laboratories.

Australian Health Promotion Association

Australia’s peak health promotion body, the Australian Health Promotion Association is the only professional association in Australia specifically for people interested or involved in the practice, research and study of health promotion.

Allied Health Professions Australia (AHPA)

Allied Health Professions Australia (AHPA) is the national voice of allied health in Australia.

Royal Australasian College of Physicians

Allied Health Professions Australia (AHPA) is the national voice of allied health in Australia

 

{slider Alpha One International Registry (AIR)}

The Alpha One International Registry (AIR) is a multinational research project, representing a combined research effort of nearly 20 countries. Website

{slider Alpha-1 Antitrypsin Deficiency Research Database}

Alpha-1 Antitrypsin Deficiency research is conducted at universities, hospitals, clinics and medical centers worldwide. This website is a searchable dataset containing comprehensive More information on a worldwide network of researchers, titles of research projects in Alpha-1, locations of Alpha-1 focused research centers and testing centers with particular expertise in Alpha-1 Antitrypsin Deficiency genotyping. You will also find links to related research resources such as Patient Registries, Scientific and Lay Organisations, Publications and Funding Sources.Website

{slider Alpha-1 Foundation}

Alpha-1 Foundation | More info
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for AATD. Website

{slider Alpha-1 Research Registry}

Alpha-1 Research Registry
A US-based registry enabling Alpha-1 affected people to contribute to the ongoing research efforts towards a cure for Alpha-1. Website
 
Alpha-1 conversion table
A basic table to help convert between the varying scales used to measure A1AD levels. Website
 
Australasian Hepatology Association
Peak professional body supporting and educating herpetology nurses and allied health professionals across Australia and New Zealand. Website
 
Australian & New Zealand Society of Respiratory Science
Leading Respiratory Science in Australasia through the 21st Century.Website
 
Australian Lung Foundation
The Australian Lung Foundation assists the relief of people suffering from lung disease, and promotes better lung health. Website
 
Big Fat Reference Guide
A comprehensive online manual about Alpha-1. Website
 
Breathe Easy Ipswich
A group for people with an interest in respiratory illness generally. Website
 
COPD Foundation
Includes details about The COPD Foundation Research Registry. Website
 
COPD International
An overview of Alpha-1 by COPD International. Website
 
Gastroenterological Society of Australia
Australia's peak body for the disciplines of gastroenterology and hepatology.Website

Heart & Lung Transplant Trust (Vic) Inc

iselect | More info
An online simple tool to compare, select, and buy health insurance in Australia.Website
 
NZORD | More info
New Zealand Organisation for Rare Disorders. Website
 
Online Mendelian Inheritance in Man | More info
Online catalog of human genes and genetic disorders. This link takes you directly to the A1AD part of the site.Website
 
Ozlung Yahoo! Group | More info
An Australian online discussion group for lung disease. Website
 

Thoracic Society of Australia & New Zealand | View site virtualgastrocentre.com | View site virtualrespiratorycentre.com | View site

Zemaira | More info
Zemaira is a product used in AAT augmentation therapy. Zemaira is owned by ZLB Behring, a subsidiary of Australia's CSL Bioplasma.Website

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Booklets

 The AAA has produced an information booklet which contains more detail about A1AD, and a poster for raising awareness. You can access the booklet and poster by clicking on the images below. The poster may be printed locally in A3 or A4 size. Please encourage your family doctor or respiratory physician to put a poster on display in the surgery or patient waiting area! For more information about A1AD, see our Links section.